Thursday, May 14, 2015

Life as a Teenager with Hypoplastic Left Heart Syndrome

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As a heart mom of a pre-teen with Hypoplastic Left Heart Syndrome, I often think about the difficulties teenagers face as they are thrust i...
4 comments:
Friday, December 6, 2013

We Are Not Alone in this Fight...

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Whether your child is 2 months old, 2 years old, or 12 years old, dealing with a serious heart defect like Hypoplastic Left Heart Syndrome...
3 comments:
Monday, February 4, 2013

I Love February...

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Because February 7 -14 is Congenital Heart Awareness Week! How will you celebrate Congenital Heart Awareness Week? There are many ...
1 comment:
Thursday, October 25, 2012

ProjectAdam - Saving Lives

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October is National Sudden Cardiac Arrest Awareness Month . Project ADAM (Automated Defibrillators in Adam’s Memory) announced this month ...
Monday, September 17, 2012

New Database For Children With Special Health Care Needs Provides Lifesaving Details To Emergency Responders!

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PARENTS OF CHILDREN AND YOUTH  WITH SPECIAL NEEDS: Do  you  have a plan for a medical emergency? A medical emergency can happen anywher...
2 comments:
Thursday, September 6, 2012

Back to School 2012...Evaluations for Neurodevelopmental Issues

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The American Heart Association recently published a scientific statement in the journal Circulation stating that children born with congeni...
Thursday, March 1, 2012

It's About Time

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When I look back over the past year, I am sweetly reminded that we have reached another milestone – Carter has a birthday tomorrow, he wi...
7 comments:
Thursday, February 2, 2012

I'm Seeing Red!

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CHD Awareness Week February 7-14! How will you spread the word? Maybe you don't have the time to organize a heart walk or a health...