About a month ago, I had the pleasure of meeting a very sweet young lady through the HLHS-Hope Facebook page by the name of Chelsea Schnell....

As defined by PubMed Health , Protein Losing Enteropathy (PLE) is an abnormal loss of serum protein from the digestive tract or the inabi...

As a parent of a child with HLHS, I often think about what concerns other heart parents have about their children. Although our children ha...

Every spring, I perform the customary ritual. Spring cleaning. I clean all of the windows, dust the winter’s cobwebs away and scrub my house...

In the roller-coaster life of a child with a heart defect, sometimes parents need someone to turn to when they want to have a conversation ...

Being a parent of a child with a heart defect is a frightening thing when you consider physical activity and the stress on the heart.  But s...

If you're visiting here, you are most likely not new to this diagnosis, but I thought it would be helpful to share what I learned when m...

Our little miracle Carter was diagnosed with Hypoplastic Left Heart Syndrome in utero. After four healthy children I had no idea how to reac...