I remember the exact second when I first heard the words - your baby has a heart defect. There is no doubt in my mind that I had the deer in...

On July 14, 2011 the Social Security Administration (SSA) added Hypoplastic Left Heart Syndrome to Compassionate Allowances (CAL) which i...

School Shopping List: Markers, Glue Sticks, Pencils, Hand Sanitizer, Pulse Oximeter, Defibrillator (AED), Individual Education Plan (IEP)….....

For those of you who know me personally, you know why I began this blog. For those who do not, I'd like to tell you "why." F...

The University of Michigan C.S. Mott Children’s Hospital has an i mportant Research Study for children who have completed the Fontan (third ...

About a month ago, I had the pleasure of meeting a very sweet young lady through the HLHS-Hope Facebook page by the name of Chelsea Schnell....

As defined by PubMed Health , Protein Losing Enteropathy (PLE) is an abnormal loss of serum protein from the digestive tract or the inabi...

As a parent of a child with HLHS, I often think about what concerns other heart parents have about their children. Although our children ha...

Every spring, I perform the customary ritual. Spring cleaning. I clean all of the windows, dust the winter’s cobwebs away and scrub my house...

In the roller-coaster life of a child with a heart defect, sometimes parents need someone to turn to when they want to have a conversation ...

Being a parent of a child with a heart defect is a frightening thing when you consider physical activity and the stress on the heart.  But s...