Why do I ask? I believe it's very relevant to a parent of a child with Hypoplastic Left Heart Syndrome who has had surgical repair, beca...

Like most kids, our heart kids face the yearly challenge of winter illness, but sometimes with greater difficulty. What can we do now to pr...

About a month ago, I was contacted by a young man with HLHS with a great deal of wisdom and a great story to tell.   Meet Andrew, HLHS survi...

I remember the exact second when I first heard the words - your baby has a heart defect. There is no doubt in my mind that I had the deer in...

On July 14, 2011 the Social Security Administration (SSA) added Hypoplastic Left Heart Syndrome to Compassionate Allowances (CAL) which i...

School Shopping List: Markers, Glue Sticks, Pencils, Hand Sanitizer, Pulse Oximeter, Defibrillator (AED), Individual Education Plan (IEP)….....

For those of you who know me personally, you know why I began this blog. For those who do not, I'd like to tell you "why." F...

The University of Michigan C.S. Mott Children’s Hospital has an i mportant Research Study for children who have completed the Fontan (third ...

About a month ago, I had the pleasure of meeting a very sweet young lady through the HLHS-Hope Facebook page by the name of Chelsea Schnell....

As defined by PubMed Health , Protein Losing Enteropathy (PLE) is an abnormal loss of serum protein from the digestive tract or the inabi...