As the holidays approach, I am reminded of our blessings and how our amazing journey began, and continues as our child born with a “half ...

  The Hospital with the Best Published Survival Rates for Hypoplastic Left Heart Syndrome Worldwide        The following information is a...

Why do I ask? I believe it's very relevant to a parent of a child with Hypoplastic Left Heart Syndrome who has had surgical repair, beca...

Like most kids, our heart kids face the yearly challenge of winter illness, but sometimes with greater difficulty. What can we do now to pr...

About a month ago, I was contacted by a young man with HLHS with a great deal of wisdom and a great story to tell.   Meet Andrew, HLHS survi...

I remember the exact second when I first heard the words - your baby has a heart defect. There is no doubt in my mind that I had the deer in...

On July 14, 2011 the Social Security Administration (SSA) added Hypoplastic Left Heart Syndrome to Compassionate Allowances (CAL) which i...

School Shopping List: Markers, Glue Sticks, Pencils, Hand Sanitizer, Pulse Oximeter, Defibrillator (AED), Individual Education Plan (IEP)….....